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Posts tagged “multiple sclerosis”

Focus: Young People

ayesha

Posted on August 22nd, 2012

Multiple Sclerosis (MS) is usually diagnosed between the ages of 25 and 31, a time when we are starting our careers, starting a family and making plans for the future. What does it mean to someone, to the way they live their life and their expectations of the future, to be diagnosed with a chronic disease like MS at such a young age? People who have been diagnosed with MS often say that they feel a stigma attached to having the condition, and often don’t want to tell their friends, colleagues or family about it. Cathy Johns, who is an author and has MS, keeps a blog about the condition and also wrote an article for the Independent about her decision to “come out”.…

Categories: World MS Day 2013

Tagged: 2013, MSIF, multiple sclerosis, Multiple Sclerosis International Federation, World MS Day, Young People

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Highlights from World MS Day 2012

Kirsty

Posted on August 17th, 2012

World MS Day was definitely a global affair in 2012, with 66 countries participating in events as well as hundreds of people who took part in our “1000 faces of MS” campaign. People with MS from around the world led the way in raising awareness and reached millions of people through their campaigning activities.   Asia The Indian MS Societies were creative with their campaigning activities this year. The Delhi chapter of the organisation used beautiful puppets clothed in Indian silk to tell the story of someone living with MS, to an audience at the Select City Mall. Elsewhere in the country over 150 people met from the Bengaluru chapter at Narayana Hrudayalaya in Bangalore to celebrate the day, and formed a human chain…

Categories: World MS Day 2012

Tagged: highlights, MS, MSIF, multiple sclerosis, Multiple Sclerosis International Federation, Round-up, World MS Day 2012

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A meeting of Minds – Twinning between Cuba and Spain

Kirsty

Posted on August 9th, 2012

In Cuba this year members of FELEM (Spanish MS Society) and MS Cuba met to celebrate the twinning of their societies. Margarita Ruiz, president of MS Cuba and Josep Maria Perello, treasurer of FELEM met together along with other members of MS Cuba on the 5th May to celebrate the twinning, and to discuss new developments in the treatment of MS. During the meeting which took place in Havana, World MS Day films and a FELEM film “Vivir con Esclerosis Multiple” (Living with MS) was played and there was also live entertainment from Comedian Omar Franco. Tweet This Post Share on Facebook

Categories: World MS Day 2012

Tagged: 2012, Cuba, FELEM, Havana, living with MS, MS, multiple sclerosis, WMSD 2012, World MS Day

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Sri Lanka joins forces for World MS Day 2012

jude

Posted on August 3rd, 2012

This year the Sri Lankan MS Association has joined forces with the Sri Lanka Medical Association and the Association of Sri Lankan Neurologists to host a series of events for MS health professionals and those affected by MS. A seminar held on the 30th May at the Sri Lanka Medical Association brought some 100 nurses and physiotherapists together to learn how best to train MS caregivers in home care and to reinforce the importance of physiotherapy in MS rehabilitation. Two get-together lunches for people with MS and their caregivers were also held in June. The lunches took place in Colombo and Kandy and provided the MS community with the opportunity to learn more about the benefits of physiotherapy as well as partaking in discussions…

Categories: World MS Day 2012

Tagged: 2012, awareness raising, multiple sclerosis, Multiple Sclerosis International Federation, Sri Lanka, WMSD 2012, World MS Day

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Sweden Launch New Website for People Recently Diagnosed with MS

Kirsty

Posted on August 3rd, 2012

Swedish Neurological association “Neurologiskt Handikappades Riksforbund” (NHR) launched a new website this year, to coincide with World MS Day. The website has been developed to assist people who have been recently diagnosed with MS by giving them valuable information about the disease and how they can treat it. NHR coupled the launch with the findings of a report which they also carried out this year. The association say that the report, which questionned people in Sweden with MS about issues they face regarding work and employment, found that 1 in 5 people with MS say that they have lost their job due to the condition. For more information and to view the report, please see the website http://www.avstamp.nhr.se/Avstamp   http://www.avstamp.nhr.se/ Tweet This Post Share…

Categories: World MS Day 2012

Tagged: 2012, awareness raising, multiple sclerosis, Multiple Sclerosis International Federation, Research, Sweden, WMSD 2012, World MS Day

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