Comments on: It’s time to get planning for WMSD 2013 http://www.worldmsday.org/wordpress/2013/03/04/its-time-to-get-planning-for-wmsd-2013/ Mon, 20 May 2013 21:56:31 +0000 hourly 1 http://wordpress.org/?v=3.5.1 By: Robert Carlyle Transcripts - Traductions http://www.worldmsday.org/wordpress/2013/03/04/its-time-to-get-planning-for-wmsd-2013/comment-page-2/#comment-215075 Robert Carlyle Transcripts - Traductions Sun, 19 May 2013 17:24:19 +0000 http://www.worldmsday.org/wordpress/?p=4894#comment-215075 Maybe you already know or you don’t know that a film exists about MS. It was produced by Revolution Films for the BBC in 1995 and its name is “Go Now”. It shows the life of a young man with MS. I don’t want to speak more about it because someone has already done that just a month ago much better than I could do it. Please read her article :

http://hollywoodjournal.com/personal-journeys/one-film-one-actor-and-one-studio-touched-my-life/20130410/

I just did a French translation if you prefer :

http://robertcarlyletf.wordpress.com/2013/04/12/one-film-one-actor-and-one-studio-touched-my-life/

The problem is that this film has never been subtitled and released on DVD, only used tapes exist. According to many comments you can read on the web, this film could help many people better understand what MS is, but the producers seem not to care about it any more or there’s a problem somehow. The purpose of my comment is to give you the idea to ask that the rights on this film should be given to you and that it can be seen by as many people as possible.

I’m just a French Robert Carlyle fan who discovered this film very recently but was very moved by it because I’m a volunteer in a sport activity for people with MS.

]]> By: JAY PATEL http://www.worldmsday.org/wordpress/2013/03/04/its-time-to-get-planning-for-wmsd-2013/comment-page-2/#comment-214645 JAY PATEL Tue, 14 May 2013 21:16:15 +0000 http://www.worldmsday.org/wordpress/?p=4894#comment-214645 DO NOT DWELL ON THE PAST
DO NOT WASTE TIME THINKING ABOUT TOMORROW
ENJOY THE PRESENT TO THE FULLEST

]]> By: Angie-Lou, KY http://www.worldmsday.org/wordpress/2013/03/04/its-time-to-get-planning-for-wmsd-2013/comment-page-2/#comment-214275 Angie-Lou, KY Fri, 10 May 2013 03:43:26 +0000 http://www.worldmsday.org/wordpress/?p=4894#comment-214275 Do the best you can,
Where you are,
With what you have.

]]> By: Priyanka http://www.worldmsday.org/wordpress/2013/03/04/its-time-to-get-planning-for-wmsd-2013/comment-page-2/#comment-214134 Priyanka Wed, 08 May 2013 09:04:47 +0000 http://www.worldmsday.org/wordpress/?p=4894#comment-214134 I have been invited by MSSI Delhi to attend WMSD programme at Delhi Select City Mall to create awareness.on the 29th of May and before that at All India Institute of Medical Sciences for a discussion of MS and Young People with leading doctors ,MSSI members, Youth Ms Group members as well as other MS persons.
WOW!!!
BUT why MAY ? PREDICTED HEAT in India, Delhi at that time will have at least 45-46 degrees centigrade of scorching heat. On enquiring I was told it was a MSIF decision ,which is in Europe, real cool! HAVE A HEART, think about us in the tropical countries. Even end March or beginning April would have been alright ,this is just plain PUNISHMENT nothing else. THINK PLEASE……. we look forward to the day but not the HEAT!!!!!

]]> By: Robbie Brewington http://www.worldmsday.org/wordpress/2013/03/04/its-time-to-get-planning-for-wmsd-2013/comment-page-1/#comment-213938 Robbie Brewington Fri, 03 May 2013 15:08:14 +0000 http://www.worldmsday.org/wordpress/?p=4894#comment-213938 I’m 64 and was diagnosed in 2001. I worked full time until I fell at work (a fall probably attributed to MS) and broke my shoulder. When I worked, I was forthright about having MS–my company had to know since fatigue often prevented me from going to the office. It was quite a job educating my company!

My motto is something I learned in high school Spanish class a LONG time ago: No hay mal que por bien no venga. (I think it’s from Cervantes.) It means that nothing bad happens that good doesn’t come from it.

This past year has been very difficult–our house was flooded (sewer backup), my husband’s health is declining, and I had to fight Social Security to get onto Social Security Disability. (My advice: hire a good lawyer!) With my husband’s declining health, I’m not sure how much longer I’ll have access to his health insurance, and I won’t be eligible for Medicare until March of 2014. (Can someone please look into why the very long gap between getting on SSD and when Medicare becomes available? Ha–maybe that someone is ME!)

No hay mal que por bien no venga has helped me through all the years since I learned it–but it’s especially valued now!

Take care everyone!

Robbie

]]> By: Sofija http://www.worldmsday.org/wordpress/2013/03/04/its-time-to-get-planning-for-wmsd-2013/comment-page-1/#comment-213916 Sofija Fri, 03 May 2013 09:57:17 +0000 http://www.worldmsday.org/wordpress/?p=4894#comment-213916 I have been a keen WMSD supporter since the start in 2009, either by organizing parties, participating in events, etc.

But it bugs me – why is MS day different every year??? Can someone please explain somewhere the reason for having a different day every year??

It would be great if we had only one day a year and that’s it… why isn’t it the case like with other diseases..?

Thanks!!

Luv,
S

]]> By: Leandro Rogerio Silva http://www.worldmsday.org/wordpress/2013/03/04/its-time-to-get-planning-for-wmsd-2013/comment-page-1/#comment-213844 Leandro Rogerio Silva Thu, 02 May 2013 14:56:45 +0000 http://www.worldmsday.org/wordpress/?p=4894#comment-213844 Viver com MS é como se fosse um campeão todas as manhãs quando acordo.
Então pratico Natação e participo de competições de Travessias de Aguas Abertas. Não tenho nenhuma pretenção em chegar em 1° lugar, mas sempre quero poder estar lá na chegada, entre os que chegam e nao tem MS.
Superando desafios dia após dia !!! Não desista Nunca !!!
Sou assim vivo a vida um dia de cada vez, com Fé sem Limites !!!
MS desde 07/2012 apos perder o paladar.
Brazil.

]]> By: Gene Caffrey http://www.worldmsday.org/wordpress/2013/03/04/its-time-to-get-planning-for-wmsd-2013/comment-page-1/#comment-213832 Gene Caffrey Thu, 02 May 2013 11:35:48 +0000 http://www.worldmsday.org/wordpress/?p=4894#comment-213832 My name is Gene Caffrey. I was diagnosed with RRMS in 2010. I am an endurance athlete competing up to Ironman Triathlons. I use exercise and diet everyday to help control my MS. I use my training and racing as tools to raise awareness to MS and show that exercise helps! My motto is Every Step Beats MS!

]]> By: SecureACure4MS http://www.worldmsday.org/wordpress/2013/03/04/its-time-to-get-planning-for-wmsd-2013/comment-page-1/#comment-213828 SecureACure4MS Thu, 02 May 2013 10:46:56 +0000 http://www.worldmsday.org/wordpress/?p=4894#comment-213828 Our Organization helps bring awareness of MS to the public and also is a support system fro those diagnosed. We look at everyone as a family. Together we fight together. Our Motto is Never Give In, ADAPT!

]]> By: Charles http://www.worldmsday.org/wordpress/2013/03/04/its-time-to-get-planning-for-wmsd-2013/comment-page-1/#comment-213818 Charles Thu, 02 May 2013 04:28:54 +0000 http://www.worldmsday.org/wordpress/?p=4894#comment-213818 I have MS, but MS does’nt have me.

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