What does Living with MS mean to you?
ayesha
Posted on May 2nd, 2012
There are just 7 days to go until we launch the 2012 World MS Day Campaign!
This year the theme for World MS Day is Living with MS. Every individuals’ experience of MS is different. Not only are there more than 2 million people around the world living with MS, there are many more affected by the disease. Family members, friends and neighbors often act as carers for their loved ones, meaning the social impact of MS reaches much further than the people who are directly affected.
You might be a person living with MS, a carer, a friend, a family member, a medical professional, or even a staff member at an MS organisation, you all have something to say about what living with MS means to you.
With this in mind we asked the 3,000 people who came through the MS life doors (a lifestyle event held in Manchester, UK) this year, to create a postcard that answered the question, What does living with MS mean to you?
We were surprised by the variety of different answers and inspired by the strong spirit of everyone that we spoke to. Key themes running through all of the postcards were a sense of loss, a sense of empowerment through the strength of others, the opportunities to meet new and inspiring people and the importance of the love and support that people with MS find in their friends and families.
We had postcards from people of all ages. Daniel, age 4, whose mother is living with MS said, Don’t worry, be happy, whilst 82 year old Alma who visited the stand with her husband of 27 years said that, ‘Living with MS is frustrating when one can’t do what you would like to do anymore’.
What does living with MS mean to you?
We have uploaded some of the postcards in the gallery below. We hope you feel inspired to create your own postcard….there will be something very special to do with it from the 9th of May!
Tagged: 2012, living with MS, Manchester, MS life, UK, World MS Day
What living with MS meant to me. It has given me a new outlook on life. I show people to appreciate walking, running, and the simple things in life that has been taken away from me.
Etre une nouvelle personne, encore plus ouverte aux problèmes des autres, parce que j’ai de la chance dans mon “malheur”.
J’ai pu rencontrer mon mari grâce à elle, nous avons eu une fille l’été dernier. J’ai aussi pu rencontrer des gens de cœur… Forts… Admirables… Gentils… La Vie en fait… Celle que je n’avait pas imaginée avant car “elle” m’a saisie pendant mes études… Donc elle a chamboulée ma vie. Je suis épuisée par cette maladie ( et un peu notre fille, j’avoue) mais Heureuse, malgré tout. Positive.
Ms mean to me new live will be givt to me ,, to start new plain and steps in my life tword the success and work
ام اس یعنی : نگاه عاشقانه خدا به من
M.S means: ” God’s amorous sight at me” so i’m as strong as mountain.
My M.S has caused me to relearn everything I took for granted in life like walking, writing and remembering the names of people I use to work with.
It has also caused me to be a lot patient with my expectations of others but mostly, myself.
Fui diagnosticada con EM hace un poco mas de un anio, tengo dos hijos pequeños y hasta ahora he estado bien, no se que pueda traer el futuro pero lo que si se es que ahora soy una mujer mas fuerte mas llena de fe, he aprendido a depender de un Dios de poder que es El que llena mi vida, y esa confianza en El me permite vivir cada día sin pensar en la enfermedad.
Har hatt MS siden 2000 og “sliter med fatigue, konsentrasjon og hukommelse. Det er slitsomt å forklare alle, når det ikke er synlig. Men jeg føler meg veldig heldig??!!.
Tåler ikke varme, blir slått ut. Noen råd for hva jeg kan gjøre?
I was diagnosed just over a year ago and it still confuses me. Sometimes I think about it and what it means for my future – my work, my relationship, will I ever be a mother – and other times I just continue on and it doesn’t cross my mind. I am not sure I have come to terms with it because of what that will actually mean for me. I just know that I am healthy and I have great supports. Each day I will face with whatever it will bring and hope to do my best.
I have had beneign MS since I was a child although I did not know this was what was causeing all my problems. I am married have 2 children and many jobs. My MS is now secondary progresive and I am in a wheelchair, but keep laughing life could be a lot worse. I was not diegnoised untill 1998. I hope you all keep your spirits up Jane.
Well, each MS case is a story by itself.
In the beginning it was ok, acceptable. Now after 23 years of the first symptoms, things have changed and symptoms too.
There are so many things I wanted to do if I didn’t have that devastation. Is it a curse ? I don’t know. I stopped thinking and future planning anymore, take it day by day as my MS is.
My advice to you is : don’t plan anything because “l’homme propose et Dieu dispose”.
We only live once, enjoy it to the most and be happy. MS teaches you patience.