What does Living with MS mean to you?
ayesha
Posted on May 2nd, 2012
There are just 7 days to go until we launch the 2012 World MS Day Campaign!
This year the theme for World MS Day is Living with MS. Every individuals’ experience of MS is different. Not only are there more than 2 million people around the world living with MS, there are many more affected by the disease. Family members, friends and neighbors often act as carers for their loved ones, meaning the social impact of MS reaches much further than the people who are directly affected.
You might be a person living with MS, a carer, a friend, a family member, a medical professional, or even a staff member at an MS organisation, you all have something to say about what living with MS means to you.
With this in mind we asked the 3,000 people who came through the MS life doors (a lifestyle event held in Manchester, UK) this year, to create a postcard that answered the question, What does living with MS mean to you?
We were surprised by the variety of different answers and inspired by the strong spirit of everyone that we spoke to. Key themes running through all of the postcards were a sense of loss, a sense of empowerment through the strength of others, the opportunities to meet new and inspiring people and the importance of the love and support that people with MS find in their friends and families.
We had postcards from people of all ages. Daniel, age 4, whose mother is living with MS said, Don’t worry, be happy, whilst 82 year old Alma who visited the stand with her husband of 27 years said that, ‘Living with MS is frustrating when one can’t do what you would like to do anymore’.

What does living with MS mean to you?
We have uploaded some of the postcards in the gallery below. We hope you feel inspired to create your own postcard….there will be something very special to do with it from the 9th of May!
Tagged: 2012, living with MS, Manchester, MS life, UK, World MS Day

For me it means to live with fear. I feel in jail and condemned to a sentence that is about to come one day or… maybe no. I was too young and that horrible day, I started a new birthday and I passed from 28 to 88 yrs. old in just one second that fatidic day that I saw my brain scan… It is hard to fight every single second for the rest of my life. That is what MS means to me and at the same time, I am grateful for responding so good to my medications and I appreciate very much the hugh effort of Drs, new medicine´s researches and all people make us feel we are not alone. Thank you and I send hopes for everyone!!! Gemma from Spain (apologies for my grammar mistakes)
cela fait 16 ans de je vis avec cette maladie. Cette maladie, dont je me suis fait amie pendant 10 ans, m’a plongé dans des univers alors inconnus : j’ai pratiqué le bouddhisme tibétain, j’ai appris à jouer aux échecs “je joue très bien. A ce jour, je ne suis plus amie avec elle. Elle devient une ennemie. Mais je garde espoir
Living with MS for me has been motivating. It has caused me to enjoy life even more than I did before and appreciate the things that I can do for myself now on my own.